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Parsonage-Turner Syndrome


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I need some info. I am a full time paramedic that was just diagnosed with Parsonage-Turner Syndrome. I just spent 16 days in the hospital (which obviously sucked). I was wondering if anyone has had any dealings with this syndrome and if so any tips on faster recovery. My phrenic nerve has been affected and now my diaphram is paralyzed along with muscles in both shoulders. And now I am obviously unable to work 'til fully healed, which I have learned could be 3-5 years. So anyone with tips would be great. Oh, and yes I am doing PT every other day and on my own at home and staying as active as possible. Thanks in advance!!!!

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I'm sorry to hear it. After some quick research it seems you may recover 75% or so in less than a month but as you say could be years for 100%. Perhaps you will be able to at least become a transfer medic to pay the bills until you can handle 911 physical stress again.

Here is the article I refer to:

http://www.healthline.com/galecontent/pars...drehabilitation

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Honestly I never heard of it. But I will do some research and see what else i can maybe add to spenacs reply.

Wishing you a fast and speedy recovery.

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I need some info. I am a full time paramedic that was just diagnosed with Parsonage-Turner Syndrome. I just spent 16 days in the hospital (which obviously sucked). I was wondering if anyone has had any dealings with this syndrome and if so any tips on faster recovery. My phrenic nerve has been affected and now my diaphram is paralyzed along with muscles in both shoulders. And now I am obviously unable to work 'til fully healed, which I have learned could be 3-5 years. So anyone with tips would be great. Oh, and yes I am doing PT every other day and on my own at home and staying as active as possible. Thanks in advance!!!!

Your diaphragm is paralyzed? Is that conducive with breathing?

Some quick googling revealed a wealth of information about your condition. Of course, your doctor should have provided you with information as well, and if he didn't, he sucks.

Good luck.

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